Data & research portal
The Data and Research Portal is an extension to the Digital Health Platform and it’s standard reporting system.
It’s primary purpose is to aggregate data from the main system and provide it for research purposes. It is designed to extract the relevant data, de-identify it and apply consent rules. The de-identification process removes personal identifiable information and will apply nearest neighbour rules to eliminate any data that could be reverse “engineered” into an identifiable state. The extracted data would then be made available to authorized research portal users.
The research portal supports the aggregation of data across multiple consenting clients. Data from multiple clients would need to have some underlying compatibility. Presagia Sports provides supporting functionality within the application to allow data to be collected with varying user friendly choices and labels with underlying codes and meanings to support aggregation within the research portal.
Configuration of a research portal project is done by our professional services team in conjunction with the primary investigator(s) of the project. This typically includes the configuration of the values within the clinical application, the extraction of the clinical data and the aggregation rules.
Future proposed work in the portal includes the development of a coordination centre to review the data and determine errors and omissions and request corrections as necessary. The centre would be able to promote the data from a raw received state to an approved state. Much of this functionality would be automated via specific rules created to enforce data integrity.
Case study
The Pac-12 partnership commenced in 2015 and includes information related to sport related concussion, the Pac-12 is a National Collegiate Athletic Association (NCAA) conference comprised of 12 leading US universities. The initiative is funded by the NCAA and the US Department of Defense.
The Pac-12 have partnered with the NCAA Concussion Assessment, Research and Education (CARE) initiative to establish the Pac-12 CARE Affiliated Program (CAP). The Pac-12 CAP will serve as a regional hub of the NCAA CARE initiative to expand the collection of sport related concussion information to include male and female student athletes participating in the Pac-12 Conference.
A parallel Pac-12 initiative provided an Electronic Health Record (EHR) to each of the Pac-12 member universities to record and manage their athletes health data related to sports injuries, illnesses and treatments. In addition to helping these schools better manage the health and performance of their athletes, the platform houses sports related concussion data from the Pac-12 CAP, and securely transfer that data for use in the broader NCAA CARE initiative.
The EHR built a research portal that enables the Pac-12 to access and aggregate data across the conference when studying health initiatives. The reporting tools allow the Pac-12 to study student athlete health at an individual, university or conference level. The insights that arise from this data enables the Pac-12 to make informed decisions on student athlete health and well-being.
About the Pac-12 Conference
The Conference has a tradition as the “Conference of Champions”, leading the nation in NCAA Championships in 52 of the last 58 years, with 511 NCAA team titles overall. The Conference comprises 12 leading US universities: The University of Arizona, Arizona State University, the University of California-Berkerley, the University of California at Los Angeles (UCLA), the University of Colorado, the University of Oregon, Oregon State University, Stanford University, the University of Southern California, the University of Utah, the University of Washington and Washington State University. For more information on the Conferences programs, member institutions, and Commissioner Larry Scott, go to www.pac-12.com/conference.